Sunday, November 23, 2014

SNL Slams Obama on Executive Amnesty

Last night, we watched Saturday Night Live and couldn't stop laughing at the opening skit. We immediately tried to find it online to share. We've watched it several times and it doesn't get old. 

Remember the old School House Rock "I'm just a bill...."? They use this for their skit. I've seen some critic SNL for their lack of constitutional knowledge... Come on! It's a skit and they only have a few minutes! I think it was priceless. They can't go into all of the ways in which a bill becomes a law! They'd have to sing about the rules committee, cloak rooms and the lot. So, with that said, enjoy the skit and laugh! 

Watch it at this link:

Saturday, November 15, 2014

Disabled Americans for Firearms Rights

I had no idea such a group existed. If you have a moment, check out Disabled Americans for Firearms Rights. 

Mission of Disabled Americans for Firearms Rights:

Proudly Representing Responsible Disabled Firearms Owners

DAFR fights for the inalienable firearms rights of responsible disabled Americans. Disabled Americans have unique needs when exercising their 2nd Amendment rights.

The mission of DAFR is intertwined within five basic areas of focus.

These areas consist of:

The introduction of firearms for self defense to disabled Americans.
Shooting sports program and organized competition for disabled Americans and wounded veterans.
Oversee firearms legislation and research their impact on Americans with disabilities.
Offer assistance to responsible disabled Americans in order to exercise their 2nd Amendment right.
Educating the public and elected officials about how disabled American firearms owners have unique needs that must be met when exercising their 2nd Amendment right.
We have also become concerned with recent legislation that is proposed throughout the United States in reaction to the tragedy in Newtown, Connecticut. With that, our organization has taken a clear stand on various bills, public acts and proposed laws that we deem would be disadvantageous to responsible disabled firearms owners. DAFR intends to shed light on the fact that many Disabled Americans can only use certain types of firearms such as the highly adaptable AR15 rifle platform. A ban or other serious restrictions on the AR15 rifle as well as certain other firearms will have an adverse effect on the rights of thousands of disabled Americans.
#2A #SecondAmendment

Monday, November 10, 2014

#Obamacare Architect: We had to trick you to help you!

Obamacare: We had to trick you to help you | Pete Kaliner on News Radio 570 WWNC

This will anger you. He even calls the American people stupid.

A FREE Way YOU Can Help My Family #Obamacare

Our kids' lifesaving medications are no longer covered because of #Obamacare The portion of the #mito cocktail we used to pay $150/month in copays will now cost us over $650/month. This doesn't include the portions of the cocktail that already were not covered by insurance. We will spend at least $800 a month. You can help us at no cost to you! Swanson Vitamins has the best prices around! They have the same brands you find at Whole Foods and EarthFare at HALF the cost. Everything from supplements, essential oils, flower essences to food to cleaning supplies. If you use this link below, you get $5 off your first order and if you spend $20, my family gets a $10 off our next order coupon. Shipping is only $4.99 no matter how much you order and sometimes you get FREE shipping. 

Please consider helping my family! Share this coupon code, too. #MitochondrialDisease #MitoCocktail #ACA  

Wednesday, November 5, 2014

Drug Coverage Cuts Endangered Sons' Lives: Opinion Piece

We know that the cuts are due to Obamacare but we need to pressure the insurance companies who also got into bed with Obama and the Democrats because they felt doing so would benefit them. The ACA harms families like mine. This is a *nonpartisan* -ahem- piece aimed at pressuring insurance companies to restore #compound #medication coverage. Physicians for Rx access is working to help restore coverage. You can join them to help fight these changes in coverage. Thom Tillis can now step up and do something, right? 

Pattie Curran is a North Carolina mother whose two sons receive treatment at Cincinnati Children’s Hospital Medical Center’s bone marrow clinic.

As the mother of two chronically ill children, our family has long faced high health care costs, and it’s getting worse, thanks to companies called pharmacy benefit managers.

My sons have a rare bone marrow failure condition called Shwachman-Diamond syndrome and have secondary mitochondrial disease. They require a broad range of medications to treat their life-threatening conditions, including compounded medications which are typically prescribed to patients who can't metabolize or tolerate commercial drugs.

By customizing prescriptions to the individual’s needs, doctors help patients like my sons, as well as patients dealing with the effects of cancer, diabetes and other serious conditions. Compounded drugs are also used by people with hormonal imbalances, chronic pain and allergies to certain ingredients in mass-produced medicines.

In July, I was notified that some of our sons' most important compounded medications are no longer being covered by Express Scripts. This is because Express Scripts – the nation’s largest pharmacy benefit manager, with 90 million Americans enrolled, according to the Associated Press –announced sweeping coverage cuts this summer to 1,000 ingredients used to make compounded medicines. The cuts are coming at the worst time for my sons, who, despite weekly trips to the ER and specialists, are trying to live normal lives filled with sports and after-school activities.

Today we find ourselves deeply in debt and drowning in the paperwork of what has become a full-time fight to restore coverage of essential, life-saving treatments for our sons. This year alone, we have been billed tens of thousands of dollars in out-of-pocket health care costs.

While some of the ingredients found in my sons’ compounded medications come in commercial form, there’s no FDA-approved medication or supplement on the market to treat mitochondrial disease. This alarms not only my family, but also my sons’ specialist. The specialist has written a letter to inform our insurance company that if my sons are not able to continue their compounded medications due to the lack of coverage, it could lead to neurodegenerative symptoms and potentially result in death.

As a mother this is devastating. I feel like I am at the mercy of pharmacy benefits managers and insurance companies.

Hundreds of thousands – perhaps millions – of Americans who use compounded medications face a loss or reduction in coverage as pharmacy benefit managers and insurance companies eliminate or severely limit coverage.

Patients and Physicians for Rx Access has formed to protect patient access to compounded medications. The coalition is made up of patients, advocacy groups, pharmacists, physicians, pharmacies and health care organizations focused on raising awareness about this crucial issue. By sharing information with patients and the doctors who are impacted by this unnecessary loss in benefits, the group hopes to fight these cuts.

Compounded medications have changed my sons’ lives, and it saddens me to know they and so many others face this new obstacle. Those most affected need to push back now and join the fight for compounded medication coverage to make an impact. Please visit to learn more.